Thanks Brian. It’s been a long journey. The tethered cord is a condition that can happen in people with her condition. She was finally diagnosed about a year ago with EDS - Ehlers Danlos Syndrome. She also has POTS and MCAS. For those who don’t know what these all are, here it is in a snippet.
EDS - Ehlers Danlos Syndrome is a connective tissue disorder that causes hyper mobility and other connective tissue issues. This is the scary one that has a high morbidity to it to those with more severe cases. She is lucky hers is on the milder spectrum but debilitating nonetheless.
MCAS - Mast Cell Activation Syndrome and certain things can trigger your mast cells to activate and it causes a whole. It cause rashes and allergic responses.
POTS or Postural orthostatic tachycardia syndrome is a nervous system disorder that cause dizziness/fainting and elevated heart rate.
Come to find out these 3 disorders are pretty commonly diagnosed together. She’s struggled in the last several years to do anything. Her joints are those of someone in there 60s/70s. She can get around a bit at home but she uses either a walker or a wheelchair when she’s out and about. It’s been hard to see all this take so long to get diagnosed.